Today was a much better day. Caileigh struggled with a fever and nausia all night, poor thing. I let her sleep next to me so I could hear her happenings. Her fever finally broke around 5am and she slept until 1030! I think her body really needed that.
She was pretty low key until her brother woke up this afternoon and it was like she hit a whole new high! She was so hard to keep toned down and on the couch or in bed. I kept trying to remind and coax her into calming down but she has missed her brother so much and he so wanted her to play with him.
We had dinner and....you guessed it, the tummy aches came back and a slight fever too. I bathed her to cool her body down and put her to bed; which she was more than obliged to listen. Here's hoping that the bath did the trick and she sleeps peacefully through the night. I hope we are on the mend and it's only up from here. :)
In other news, I put her to bed and tried to give Braedon some quality snuggle time. He loves to rock and have me sing to him before he lays down. On the way to his room I thought he grabbed his milk cup on the table as he walked through. It was a waxed birthday candle instead. He had taken a huge chunk out of it....so to the poison control number I went and laughed about his attempt to give me a nervous breakdown. She assured me it is ok, not to worry and to just give him extra water.
There is never a dull moment in out house! So glad she is getting better, thank you everyone for your prayers. I know the extra thoughts going up has helped her to heal!
Showing posts with label Braedon. Show all posts
Showing posts with label Braedon. Show all posts
Monday, September 27, 2010
Sunday, September 26, 2010
Catch up and apologies
Wow, I cannot believe it has been over a month since I have posted....I am sorry. So much has been going on that I have not even had the energy.
Quick recap: in the last month my Mom has had 2 possible TIA's, we are waiting for MRI results. We bought a house on the 18th of August and have been working night and day to tear out the old carpeting (32 years old) and replace it with wood floors ourselves in order to try and make it as clean for Braedon as possible.
Two weeks ago I gave myself a serious concussion while trying to build a fence on our property. I am scheduled for an MRI this week since my dizziness and nausea has not gone away yet. My mom went from being the one cared for to caring for me since Soapy is gone. I have not felt comfortable driving until recently and even now I don't go very far.
A week ago, Braedon had a pretty good outbreak with his digestive stuff. It's the first real bad one since June. We meet with his allergist this Wednesday and we are hoping to hear about test results soon from the genetics lab at Children's.
This past Wednesday Caileigh came home complaining of a headache. That night at Awanas she burst into tears and grabbed her head with sudden pain. We went home where she soon after began vomiting and running a high fever. Twelve hours later she was complaining of a stiff neck so we headed to the doctors. They tested her visually and decided to send her home and treat for a sinus infection. Thursday night we were back at the hospital doing a spinal tap and taking blood tests. Her tests showed Meningitis! We have been at the hospital doing IV fluids and antibiotics ever since...up until last night. Saturday night the vein collapsed and we had to restart her IV. Normally this wouldn't be anything big except her veins are extremely hard to find. We worked on it from 6:30 pm until midnight with no luck. They called in the ICU nurses, NICU, flight for life EMTs and anesthesia to try. NO ONE could get it in. They decided to stop as it was not working and she was in hysterics by then. The decided to wait until this morning to make a decision.
So far there are no growths in her cultures which is GREAT! That means she most likely has a viral form of meningitis. She could have caught any virus and her body mutated it thus giving her meningitis. It is NOT the meningitis that is contagious but the virus that is. It could simply leave someone feeling yucky, tired may be a slight fever but would be gone a few days later. She was not so lucky and her doctor said he only sees maybe one or two cases a year of meningitis. He was so excellent. He was on call the night she came in and he met us at the hospital to see her for himself. He has been on call all weekend and has come to check on her several times.
After talking with him this morning and observing Caileigh, he decided to send us home....with strict rules. She is NOT to leave the house. We are NOT to let anyone new in to the house until after the cultures are finished. While he is fairly certain it is just viral, as the cultures so far are clean; it is not unheard of to see something pop up the last day of observation. We don't want to infect anyone else. Since they tried the IV again this morning and still cannot get it, the next option would be to sedate her completely. That is very invasive since so far there is no bacteria to require the antibiotics. He has decided to leave them off until something is found otherwise. Since there is nothing hooked up to her, they sent her home as they are not doing anything for her right now but watching her. We can do that from home. If anything gets worse we are to come straight back.
Right after we got home she got extremely nauseous which scared me and she was very weak but she never vomited. I have her in bed sleeping. I am praying that all it was, was over stimulation from getting out to the car and driving home and the adrenaline of excitement of being home. She has really missed her brother and he has missed her too.
I am going to go take a quick nap before either of them wakes but will post some really cute pictures of them tonight once they are back in bed and asleep. Thank you EVERYONE for your prayers and well wishes. There are so many of you that I don't even know but I am grateful for all the prayers. I told her today, "Caileigh there are so many people sending up prayers for you that I think God decided to make you well enough to go home so He can think straight!" She laughed and thought that was pretty cool, she also is in awe of how many people from all over the world are now prayer for her.
To our family and close friends, thank you for stepping up and helping with Braedon, coming to the hospital when I needed help and strength. Thank you for your prayers for Caileigh and for me.
To all of you who just happened to read about our struggles this week, thank you for caring enough to follow along and pray for her. It's so hard sometimes to be here caring for these two babies of mine when Soapy is gone. I am so lucky to have friends and parents close and a God who is AMAZING!
PRAYER REQUESTS:
1. that the cultures would remain clear and we don't have to return for more iv's
2. that Caileigh continues to mend and the rest of us don't end up sick with the virus she had
3. that Braedon stays healthy this week because Mama is T.I.R.E.D!
4.continued prayers for Braedon and that the doctors at Children's Hospital in Denver can stumble upon what God wants them to see. That He is able to provide them with the wisdom to a diagnosis and a cure for him.
Thanks so much and have a blessed weekend!
Quick recap: in the last month my Mom has had 2 possible TIA's, we are waiting for MRI results. We bought a house on the 18th of August and have been working night and day to tear out the old carpeting (32 years old) and replace it with wood floors ourselves in order to try and make it as clean for Braedon as possible.
Two weeks ago I gave myself a serious concussion while trying to build a fence on our property. I am scheduled for an MRI this week since my dizziness and nausea has not gone away yet. My mom went from being the one cared for to caring for me since Soapy is gone. I have not felt comfortable driving until recently and even now I don't go very far.
A week ago, Braedon had a pretty good outbreak with his digestive stuff. It's the first real bad one since June. We meet with his allergist this Wednesday and we are hoping to hear about test results soon from the genetics lab at Children's.
This past Wednesday Caileigh came home complaining of a headache. That night at Awanas she burst into tears and grabbed her head with sudden pain. We went home where she soon after began vomiting and running a high fever. Twelve hours later she was complaining of a stiff neck so we headed to the doctors. They tested her visually and decided to send her home and treat for a sinus infection. Thursday night we were back at the hospital doing a spinal tap and taking blood tests. Her tests showed Meningitis! We have been at the hospital doing IV fluids and antibiotics ever since...up until last night. Saturday night the vein collapsed and we had to restart her IV. Normally this wouldn't be anything big except her veins are extremely hard to find. We worked on it from 6:30 pm until midnight with no luck. They called in the ICU nurses, NICU, flight for life EMTs and anesthesia to try. NO ONE could get it in. They decided to stop as it was not working and she was in hysterics by then. The decided to wait until this morning to make a decision.
So far there are no growths in her cultures which is GREAT! That means she most likely has a viral form of meningitis. She could have caught any virus and her body mutated it thus giving her meningitis. It is NOT the meningitis that is contagious but the virus that is. It could simply leave someone feeling yucky, tired may be a slight fever but would be gone a few days later. She was not so lucky and her doctor said he only sees maybe one or two cases a year of meningitis. He was so excellent. He was on call the night she came in and he met us at the hospital to see her for himself. He has been on call all weekend and has come to check on her several times.
After talking with him this morning and observing Caileigh, he decided to send us home....with strict rules. She is NOT to leave the house. We are NOT to let anyone new in to the house until after the cultures are finished. While he is fairly certain it is just viral, as the cultures so far are clean; it is not unheard of to see something pop up the last day of observation. We don't want to infect anyone else. Since they tried the IV again this morning and still cannot get it, the next option would be to sedate her completely. That is very invasive since so far there is no bacteria to require the antibiotics. He has decided to leave them off until something is found otherwise. Since there is nothing hooked up to her, they sent her home as they are not doing anything for her right now but watching her. We can do that from home. If anything gets worse we are to come straight back.
Right after we got home she got extremely nauseous which scared me and she was very weak but she never vomited. I have her in bed sleeping. I am praying that all it was, was over stimulation from getting out to the car and driving home and the adrenaline of excitement of being home. She has really missed her brother and he has missed her too.
I am going to go take a quick nap before either of them wakes but will post some really cute pictures of them tonight once they are back in bed and asleep. Thank you EVERYONE for your prayers and well wishes. There are so many of you that I don't even know but I am grateful for all the prayers. I told her today, "Caileigh there are so many people sending up prayers for you that I think God decided to make you well enough to go home so He can think straight!" She laughed and thought that was pretty cool, she also is in awe of how many people from all over the world are now prayer for her.
To our family and close friends, thank you for stepping up and helping with Braedon, coming to the hospital when I needed help and strength. Thank you for your prayers for Caileigh and for me.
To all of you who just happened to read about our struggles this week, thank you for caring enough to follow along and pray for her. It's so hard sometimes to be here caring for these two babies of mine when Soapy is gone. I am so lucky to have friends and parents close and a God who is AMAZING!
PRAYER REQUESTS:
1. that the cultures would remain clear and we don't have to return for more iv's
2. that Caileigh continues to mend and the rest of us don't end up sick with the virus she had
3. that Braedon stays healthy this week because Mama is T.I.R.E.D!
4.continued prayers for Braedon and that the doctors at Children's Hospital in Denver can stumble upon what God wants them to see. That He is able to provide them with the wisdom to a diagnosis and a cure for him.
Thanks so much and have a blessed weekend!
Wednesday, August 11, 2010
Happy Wednesday!
So the title isn't much but I am not running on creativity today. :)
Yesterday was a very long long day. We were at Children's Hospital in Denver by 9:30. We got right in to the doctor on the metabolics floor. Braedon has gained weight!! So that was wonderful news! We began the forever-long process of the family history, his history, his current state, our concerns....etc, etc, etc.
The doctor came in at 11 and observed him for an hour or more. He watched him run, talk, play with a ball, walk, retrieve things and how he reacted to being picked up and stretched. After the exam he rattled off about 6 codes to the other doctor of things to test for. One I know was a cholesterol test. He is concerned with whether Braedon's cholesterol is high enough. He said, most people think of it as a bad thing but it's even worse to not have enough of it.
The doctor was also concerned with Braedon's muscle strength. He runs like a 13 month old, not a 20month old. His hips extend too far (mine do too but I attributed that to dance and my joints have always hyperextended) and the muscle that runs under his armpit down his side does not flex as you pick him up. Rather, he goes somewhat limp and slides down through your arms. You have to have a tight grip on him when you pick him up. I always thought it was him being silly or throwing a fit but the doctor said he can feel that the muscles don't retract at all there. So they are doing some testing for that.
The other big thing they touched on briefly was autism. While his social skills are wonderful and he is totally outgoing, there are some behavioral patterns that concerned the doctor (and others before him) to watch him closely over the next 6 months to see how he develops. His speech is not as good as it should be, his GI problems can go hand in hand with autism, so can seizures. While he hasn't been ruled to have seizures yet, he has had episodes of staring off and not responding to sounds, objects, voices calling him. The doctor said if he is, it will most likely be on the lighter side.
Some of the other concerns are his mood swings and how quickly they change and explode over nothing. They want to monitor those as well to see if it is a personality trait (yay for me!) or something more.
I did ask before we left to draw labs, if there was a chance these health conditions could have been caused in utero. I have frequently worried and blamed myself for his health problems. I had a stomach infection when I got pregnant and before I knew I was carrying this beautiful baby boy I began the medication packs to clean it all up. The meds were not safe meds for pregnancy. Then you add on the blood thinner injections and the reflux medication and I have beat myself up over what I could have done to him before he was ever born. It is a horrible feeling. The doctor assured me that there was nothing I could have done to create these problems, they are genetic...whatever he is dealing with. I need not worry about how I damaged my child's health and future and well being before he even had a chance to breathe his first breath.
That gives me a sense of peace (a small one but I will take it). After four miscarriages, you begin to wonder what you hae done wrong and the next time vow to be perfect. You strive in every fasion to be perfect, eat perfectly, sleep/drink/exercise perfectly. Nothing is out of place and at the frist sign of something wrong you rush straight to the doctor because the thought of losing another precious child is more than you can bare. That was/is me. I stay awake...like tonight, wondering what "we" are missing in his diagnosis. I am praying, pleading with God to heal him and I believe He will and is doing it right now in front of me.
Yesterday was a very long long day. We were at Children's Hospital in Denver by 9:30. We got right in to the doctor on the metabolics floor. Braedon has gained weight!! So that was wonderful news! We began the forever-long process of the family history, his history, his current state, our concerns....etc, etc, etc.
The doctor came in at 11 and observed him for an hour or more. He watched him run, talk, play with a ball, walk, retrieve things and how he reacted to being picked up and stretched. After the exam he rattled off about 6 codes to the other doctor of things to test for. One I know was a cholesterol test. He is concerned with whether Braedon's cholesterol is high enough. He said, most people think of it as a bad thing but it's even worse to not have enough of it.
The doctor was also concerned with Braedon's muscle strength. He runs like a 13 month old, not a 20month old. His hips extend too far (mine do too but I attributed that to dance and my joints have always hyperextended) and the muscle that runs under his armpit down his side does not flex as you pick him up. Rather, he goes somewhat limp and slides down through your arms. You have to have a tight grip on him when you pick him up. I always thought it was him being silly or throwing a fit but the doctor said he can feel that the muscles don't retract at all there. So they are doing some testing for that.
The other big thing they touched on briefly was autism. While his social skills are wonderful and he is totally outgoing, there are some behavioral patterns that concerned the doctor (and others before him) to watch him closely over the next 6 months to see how he develops. His speech is not as good as it should be, his GI problems can go hand in hand with autism, so can seizures. While he hasn't been ruled to have seizures yet, he has had episodes of staring off and not responding to sounds, objects, voices calling him. The doctor said if he is, it will most likely be on the lighter side.
Some of the other concerns are his mood swings and how quickly they change and explode over nothing. They want to monitor those as well to see if it is a personality trait (yay for me!) or something more.
I did ask before we left to draw labs, if there was a chance these health conditions could have been caused in utero. I have frequently worried and blamed myself for his health problems. I had a stomach infection when I got pregnant and before I knew I was carrying this beautiful baby boy I began the medication packs to clean it all up. The meds were not safe meds for pregnancy. Then you add on the blood thinner injections and the reflux medication and I have beat myself up over what I could have done to him before he was ever born. It is a horrible feeling. The doctor assured me that there was nothing I could have done to create these problems, they are genetic...whatever he is dealing with. I need not worry about how I damaged my child's health and future and well being before he even had a chance to breathe his first breath.
That gives me a sense of peace (a small one but I will take it). After four miscarriages, you begin to wonder what you hae done wrong and the next time vow to be perfect. You strive in every fasion to be perfect, eat perfectly, sleep/drink/exercise perfectly. Nothing is out of place and at the frist sign of something wrong you rush straight to the doctor because the thought of losing another precious child is more than you can bare. That was/is me. I stay awake...like tonight, wondering what "we" are missing in his diagnosis. I am praying, pleading with God to heal him and I believe He will and is doing it right now in front of me.
Please pray with me, my husband and my family that God would allow these tests to come back clean, that the IGE that was way high would come back normal and the doctors would scratch their heads and chalk him up to a medical mystery. Thank you thus far for all the prayers, advice and well wishes. We appreciate them so much!
Friday, July 23, 2010
Free and Clear!
That is what the GI doctors gave us as a diagnosis today. They were more than pleased with Braedon's development and weight gain (he went from the 33rd% to the 50th% in 6 weeks) and his tummy sounds were great!
They were overjoyed with how well he has done the last month since he has been clear of episodes throughout that time frame.
Our protocol now is to try taking out his morning dose of the medication helping his digestion and see how his body responds to that. She agrees the evening dose for now is still wise until we see how he does and then maybe go to every other night if he tolerates the first decrease well.
We went over lab results and everything looked good except his IgE levels. There were very off. This is an immunoglobulin that deals with allergies. It can be a result of a parasitic infection (he has more than been tested for these and everything has been clear) or allergy issues. We have an appointment scheduled with his allergist at National Jewish mid September (that was their earliest :( so we will have to be patient) to do more testing. The most popular I guess are feline, dust mites, mold and pollen. So I guess that is where we will start. These antibodies can be hyper-active if he has been in contact with his allergies. So we will see what they say and possibly try adding soy and/or dairy back into his diet.
I did ask what would be next if the weaning of meds doesn't work. She said they aren't sure. There are clinics around the country that test the digestive issues, they don't do these certain test. They are in Columbus, Ohio and Milwaukee, WI. She said even if they were to give a diagnosis, they would treat it the same way and there isn't a cure/fix to the problem. He would be this way for life...yay! =/ She said there is the possibility of using Botox to inject into the sphincter (sp??) between the stomach and small intestine to keep it open so food can be passed through. Please be in prayer about this. They have someone who can do this but it doesn't sound very fun or easy to me....
Heading to bed now, thankful beyond measure that the labs came back mostly normal and the doctors were pleased with how Braedon looked and acted while we were there. Praising God for one step at a time!
They were overjoyed with how well he has done the last month since he has been clear of episodes throughout that time frame.
Our protocol now is to try taking out his morning dose of the medication helping his digestion and see how his body responds to that. She agrees the evening dose for now is still wise until we see how he does and then maybe go to every other night if he tolerates the first decrease well.
We went over lab results and everything looked good except his IgE levels. There were very off. This is an immunoglobulin that deals with allergies. It can be a result of a parasitic infection (he has more than been tested for these and everything has been clear) or allergy issues. We have an appointment scheduled with his allergist at National Jewish mid September (that was their earliest :( so we will have to be patient) to do more testing. The most popular I guess are feline, dust mites, mold and pollen. So I guess that is where we will start. These antibodies can be hyper-active if he has been in contact with his allergies. So we will see what they say and possibly try adding soy and/or dairy back into his diet.
I did ask what would be next if the weaning of meds doesn't work. She said they aren't sure. There are clinics around the country that test the digestive issues, they don't do these certain test. They are in Columbus, Ohio and Milwaukee, WI. She said even if they were to give a diagnosis, they would treat it the same way and there isn't a cure/fix to the problem. He would be this way for life...yay! =/ She said there is the possibility of using Botox to inject into the sphincter (sp??) between the stomach and small intestine to keep it open so food can be passed through. Please be in prayer about this. They have someone who can do this but it doesn't sound very fun or easy to me....
Heading to bed now, thankful beyond measure that the labs came back mostly normal and the doctors were pleased with how Braedon looked and acted while we were there. Praising God for one step at a time!
Wednesday, June 2, 2010
Stream of Consciousness
I feel horrible for not updating sooner. We have had a very busy three weeks. After getting Braedon out of the hospital, my sister came out to visit for a week to help out. She left and the next week my mother in law, sister in law and brother in law came to visit for a week. This past week my uncle came out to visit. We have been blessed with the ability to spend so much time with family lately and the wonderful help that they bring.
The medicinal cocktail they have Braedon on seems to be helping a bit. They have put him on probiotics and zinc to help with his appetite and some of the stomach discomfort. He is on some respiratory medicines to help the asthma and nasal secretions. He is on some antibiotics that, in this weaker concentration, are used to promote digestion. All of these, while expensive, are actually helping. Instead of the daily vomit and diarrhea routine we were experiencing, it is much more tame. We have two really bad days a week where he just suddenly starts throwing up and will every 20 minutes for about 5 hours, during that time the bowls get worse and they persist for about 48 hours. He gets very week and just sleeps in my arms until his body starts to heal and he wakes up with more pep. He has gained back about a pound and a half since the 11th of May. We are grateful for that, he is nearly at the same weight he was last June and even though he has always been a good six months ahead in his clothes size, he is now sporting 12-18 month clothing (he actually fits 9mos shorts best around the waist, 12 months are now even too big). We bought him 12 mos clothes last June for our vacation to Charleston. I am trying to not freak out about that and be patient and let the medicines help to encourage him to eat.
I am rejoicing in the fact that my husband met with his VA counselor today. She helped him with his resume and said she believed she could help him find a new job that would offer great benefits fairly soon and easily. I am praying for this; I need him home, our kids need him home.
Braedon has also added some new vocabulary this week and I am praying it sticks this time. He has a habit of adding new words or sounds and then loses them just as quickly. He can now ribbit like a frog, he started saying "DADA" which he hasn't said since he was about 7 months old. He still barks and meows and I think he tried to say "sissy" and crow like a rooster today. If I can remember I will try and record him imitating a frog and post it soon.
Tomorrow we leave for Denver again for more blood work. The sweat test they did last week didn't collect enough sweat for the test. If anyone is ever faced with having to do this for your child, save yourself the trouble and torture of your child afraid and screaming, just get the blood test; they will do it anyways if you have a positive sweat test. We are going to do the blood test for Cystic Fibrosis tomorrow and a whole gamut of tests for antibody allergies that would coincide with the autoimmune disorders they are testing for. I don't know how long those take to get back, I am hoping not long.
Caileigh is out of school now, has been for almost two weeks. She is getting bored already, not that she has told me or that the action packed adventures our family members have taken her on hasn't been enough but I can tell she isn't being mentally stimulated anymore. Time to break out the crafts and workbooks I bought just for the summer!
We are having a garage sale this weekend to get rid of things we don't need or can live without for now. We are taking all the money and paying off some debt. Braedon's health stuff is starting to get up there in $$ and I am concerned it may get worse before it gets better. We are talking of relocating to a few different locations as we figure out what Braedon's problems are. We don't want to have debt to hang over us along with the financial burden of a sick child. A friend of my husband, his wife does medical billing from home; I am looking into it. It may be an option for now until I can have the time to pursue photography or Mary Kay. Neither is working for me right now, I just can't plan on being anywhere when I am not sure Braedon will be well.
Please pray for us that God shows us where He wants us to be and what He wants us to be doing. Please pray God provides us with conclusive test results so we can begin to move forward. Please pray I can get some sleep tonight; Braedon has already been up twice crying in pain and I have typed most of this while holding him asleep in my arms at one point or another.
*****Thank you to everyone praying for us and for loving on my son from a distance. It means so much to me to know there are other prayer "warriors" out there petitioning on his behalf while I hold him.*****
The medicinal cocktail they have Braedon on seems to be helping a bit. They have put him on probiotics and zinc to help with his appetite and some of the stomach discomfort. He is on some respiratory medicines to help the asthma and nasal secretions. He is on some antibiotics that, in this weaker concentration, are used to promote digestion. All of these, while expensive, are actually helping. Instead of the daily vomit and diarrhea routine we were experiencing, it is much more tame. We have two really bad days a week where he just suddenly starts throwing up and will every 20 minutes for about 5 hours, during that time the bowls get worse and they persist for about 48 hours. He gets very week and just sleeps in my arms until his body starts to heal and he wakes up with more pep. He has gained back about a pound and a half since the 11th of May. We are grateful for that, he is nearly at the same weight he was last June and even though he has always been a good six months ahead in his clothes size, he is now sporting 12-18 month clothing (he actually fits 9mos shorts best around the waist, 12 months are now even too big). We bought him 12 mos clothes last June for our vacation to Charleston. I am trying to not freak out about that and be patient and let the medicines help to encourage him to eat.
I am rejoicing in the fact that my husband met with his VA counselor today. She helped him with his resume and said she believed she could help him find a new job that would offer great benefits fairly soon and easily. I am praying for this; I need him home, our kids need him home.
Braedon has also added some new vocabulary this week and I am praying it sticks this time. He has a habit of adding new words or sounds and then loses them just as quickly. He can now ribbit like a frog, he started saying "DADA" which he hasn't said since he was about 7 months old. He still barks and meows and I think he tried to say "sissy" and crow like a rooster today. If I can remember I will try and record him imitating a frog and post it soon.
Tomorrow we leave for Denver again for more blood work. The sweat test they did last week didn't collect enough sweat for the test. If anyone is ever faced with having to do this for your child, save yourself the trouble and torture of your child afraid and screaming, just get the blood test; they will do it anyways if you have a positive sweat test. We are going to do the blood test for Cystic Fibrosis tomorrow and a whole gamut of tests for antibody allergies that would coincide with the autoimmune disorders they are testing for. I don't know how long those take to get back, I am hoping not long.
Caileigh is out of school now, has been for almost two weeks. She is getting bored already, not that she has told me or that the action packed adventures our family members have taken her on hasn't been enough but I can tell she isn't being mentally stimulated anymore. Time to break out the crafts and workbooks I bought just for the summer!
We are having a garage sale this weekend to get rid of things we don't need or can live without for now. We are taking all the money and paying off some debt. Braedon's health stuff is starting to get up there in $$ and I am concerned it may get worse before it gets better. We are talking of relocating to a few different locations as we figure out what Braedon's problems are. We don't want to have debt to hang over us along with the financial burden of a sick child. A friend of my husband, his wife does medical billing from home; I am looking into it. It may be an option for now until I can have the time to pursue photography or Mary Kay. Neither is working for me right now, I just can't plan on being anywhere when I am not sure Braedon will be well.
Please pray for us that God shows us where He wants us to be and what He wants us to be doing. Please pray God provides us with conclusive test results so we can begin to move forward. Please pray I can get some sleep tonight; Braedon has already been up twice crying in pain and I have typed most of this while holding him asleep in my arms at one point or another.
*****Thank you to everyone praying for us and for loving on my son from a distance. It means so much to me to know there are other prayer "warriors" out there petitioning on his behalf while I hold him.*****
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