I met Robin through MckMama's blog sometime at the end of last year. Hailey was in the hospital with her 6th round of Encephalopathy. Things were not good, Robin was scared and she reached out for prayer support. I contacted Robin through Facebook and we began talking. I began praying for her and Hailey and her husband Jeremy. They also have an adorable little boy, JJ.
Robin and I have been there over the past 7 months for each other. Talked, been mad, laughed at some of the silly things our husbands do sometimes. We have met when our kids have been in the hospital and made lunch dates in between. It has been great meeting and making a great friend.
Hailey is back in the hospital as of yesterday. This is her 8th episode and this particular round has been much worse. The doctors over the last several years have tried several tests, labs, drug mixes to help but nothing has worked. Currently, they are in the PICU and talk has been made today of sending Hailey to Boston Children's soon to run better, more detailed tests.
This particular round has been so hard on Robin and Jeremy. They are tired of watching their daughter battle through this. They are worn down physically, emotionally, mentally and especially financially. A few weeks ago Robin told me their insurance company had dropped Hailey and no longer would be covering any of her medical expenses. Her medications alone are nearly $4000 a month, not to mention the doctors visits, which are many and typically several a week and the hospital stays.
They are so tired of being separated and scared not knowing what is causing these episodes or how to correct them. There isn't a doctor yet that seems to have a good idea or willingness to come to a conclusion. They need help NOW!
Please be in fervent prayer for them. Please pray for the doctors, that they may come to an epiphany as to what is wrong. Please give the doctors wisdom and grace as they research and listen to Robin's concerns. Please pray for Hailey, that her little body would stay strong through these episodes. They are very violent and tough on her and many times can necessitate a crash cart being close by. Please pray for Robin and Jeremy as they try to stay strong in each other and parent two children who are not allowed to be together during these times. Please pray for their spirits, that God would life them up and comfort them; bring them peace. Please pray for their financial stresses as they are many and overwhelming. Please just pray.
We met this past Friday for lunch while I was at Children's Hospital with my son. Hailey was so happy and smiling through the entire lunch. It is hard to see these pictures (they were taken during lunch) and know that less than 24 hours later she was rushed to the ER. It breaks my heart to see this and hear the pain in Robin's words; any mother can relate.
The dance studio I work with has decided to organize a dance benefit for the Visbal family. We are still ironing out dates but it looks to be the end of August or first week in September. We would love all the local Colorado support that we can get. If you are not local and would like to give to the family, please send me an email at cmartin2773@gmail.com and I can give you more information and arrange a donation site if I see interest. We are trying to raise as much money as we can to give them, to help alleviate the heavy financial burden they have on their shoulders. Since Hailey's episodes are so unpredictable and can last several weeks, Robin is unable to work. She has created an Etsy store called Hailey Bug Creations to try and bring in any money she can from home. Jeremy works full time and bears the brunt of their burden. Please consider stopping by and browsing her store. I have purchased many things from her and they are always adorable and very reasonably priced. Like this headband Caileigh LOVES to wear:
I also am an Independent Mary Kay Consultant. I am committed to giving back part of my sales to Robin and Jeremy. If you would like to help that way, please visit my website, www.marykay.com/cmartin2773 and help yourself to wonderful products for your body and valuable tips and learning materials. I will give 20% of my sales to Robin and Jeremy as my own way of helping.
If giving is not something you can do right now, please pray, send her a message, leave her a comment that shows support. When your child is laying in a hospital bed, machines going off and doctors scratching their heads, it brings on the worst thoughts and extreme panic a mother could ever feel. I have been there and thank God that He is healing my son. I pray the same for Robin and Hailey.
Please check back often and I will continue to post updates on Hailey's condition as well as more information on the dance benefit as it comes available. Thank you for your prayers and thoughts in advance. This family deserves a break and miraculous healing. Their daughter is too precious to be suffering like this.
Thanks and God Bless you and your family.
No comments:
Post a Comment